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Fragmented

A Doctor's Quest to Piece Together American Health Care

ebook
1 of 1 copy available
1 of 1 copy available

An award-winning physician-writer exposes how pervasive cracks in the health care system cost us time, energy, and lives—and how we can fix them.

There's an unspoken assumption when we go to see a doctor: the doctor knows our medical story and is making decisions based on that story. But reality frequently falls short. Medical records vanish when we switch doctors. Critical details of life-saving treatment plans get lost in muddled electronic charts. The doctors we see change according to specialty, hospital shifts, or an insurer's whims. Physician Ilana Yurkiewicz calls this phenomenon fragmentation, and, she argues, it's the central failure of health care today.

In this gripping narrative from medicine's front lines, Yurkiewicz reveals how a system that doesn't talk to itself puts insupportable burdens on physicians, patients, and caregivers, forcing them to heroic lengths to hold the pieces together—barely. The stories she tells are at once harrowing and commonplace. A patient narrowly averts an unnecessary, invasive heart procedure by producing a worn rhythm strip he has carried in his pocket for a decade. A man diagnosed with leukemia while visiting from abroad has thirty-one physicians, but no one he can call "his" doctor, with tragic consequences. When Yurkiewicz's own father falls ill, a culture that incentivizes health care providers to react with quick fixes to the problems immediately before them—often to the neglect of a patient's overall narrative—leads to weeks of additional suffering and a risky hospital transfer.

The system is hanging by a thread, and we need better solutions. Yurkiewicz issues a clear-eyed call for change, naming concrete reforms doctors and policymakers can make, and empowering patients and their loved ones to advocate for themselves in the meantime. Urgent, radiantly humane, and ultimately hopeful, Fragmented a prescription for what really needs fixing in modern medicine.

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    • Library Journal

      February 1, 2023

      What's the real problem with healthcare today? It's Fragmented, says Stanford physician Yurkiewicz, with lapses in data sharing and roadblocks to patient-doctor communication built into the system. Prepub Alert.

      Copyright 2023 Library Journal

      Copyright 2023 Library Journal, LLC Used with permission.

    • Publisher's Weekly

      Starred review from May 1, 2023
      “Fragmentation—or the insertion of gaps into a patient’s story, which blindfolds health care workers to the whole—is the single greatest problem underlying American health care,” argues oncologist Yurkiewicz in her startling debut. Drawing on incidents from her career, she examines how discontinuities in the health care system caused by record-keeping software, insurance companies, and a medical culture focused on specialization all lead to inferior treatment. Electronic medical records, she posits, are often too disorganized to be useful, and she recounts the difficulty she had working at a hospital where she had to pore over extensive records while tending to 15 patients and “getting paged five to ten times an hour.” Yurkiewicz emphasizes the benefits of seeing the same doctor for long-term medical care and excoriates insurance companies for deprioritizing follow-up visits by reimbursing doctors more for first-time appointments. Illuminating case studies drive home the dire consequences of fragmentation and show how breakdowns in care happen, such as the story of an infectious disease doctor who, examining Yurkiewicz’s patient through his “lens of expertise,” missed the presence of a rare fatal infection because he failed to account for symptoms that fell outside his specialization. Persuasive and damning, this scathing indictment unsettles.

    • Kirkus

      May 1, 2023
      A reflective doctor uses moving stories to reveal huge gaps and potential fixes in the deeply flawed American health care system. Yurkiewicz's poignant prose reads like a novel, knitting patient and personal stories with an honest insider's evaluation of a highly problematic system. The author, a physician on the faculty of Stanford Medicine, writes from her experiences as a resident, fellow, oncologist, and caregiver. As she states, the system is designed for reaction and "shifts blame onto individuals instead of focusing on sustainable systemic changes," leaving patients and their families at serious risk. Yurkiewicz describes three major issues with the American health care system and presents the potential solutions. In the first part, "The Data Dig," the author tackles the massive difficulties she encounters with electronic medical records. When a patient has a complex history, attempting to treat them is "like opening a book to page 200 and being asked to write page 201." In the second section of the book, "Lost to Follow-Up," Yurkiewicz calls for a more preventative-focused system. She uses multiple patient stories to explain the critical, yet common, problem of fielding a full team of doctors and illuminates the many issues involved with the pernicious 28-hour shift, "a rite of passage for doctors." In "The Stories We Tell Ourselves," the author criticizes many enduring myths about the U.S. health care system, and in the chapter titled "These Things Happen," she examines her subject through the lens of her caregiving role for her ill father. "I started to see my dad's hospitalization as an endless series of branch points: each of them could make or break the recovery of a critically ill person...His medical care was a game of risk." Though Yurkiewicz may not fully solve the health care game, she provides plenty of food for thought for caregivers and medical professionals. An engaging read that paints an honest picture of how a broken system impacts patients and providers.

      COPYRIGHT(2023) Kirkus Reviews, ALL RIGHTS RESERVED.

    • Library Journal

      July 7, 2023

      Physician and medical journalist Yurkiewicz makes a frightening and compelling case against a medical system that doesn't promote--and often hinders--communication among medical caregivers, to the detriment of patients. The author, an oncologist, recounts her encounters with patients who carry from appointment to appointment yellow notepads of handwritten notes or binders filled with pages of records because medical records systems have failed them. The book notes that even with herculean efforts made by conscientious physicians such as Yurkiewicz, vital information is often missed or misinterpreted. Adding to the confusion is that only one out of every four Americans has a primary-care physician, and even those with insurance often fail to receive effective follow-up care. The book compares the fragmentation in medicine to Swiss cheese, in which the holes in each layer increase the potential for gaps in patient care. Yurkiewicz argues for addressing all these issues and practicing "big picture" patient treatment rather than responding to "snapshots in time." The book includes a checklist for patients, as Yurkiewicz notes that patients themselves are the only guaranteed source of continuity in their own care. VERDICT An informative and sobering look at the state of patient care in the United States.--Gail Eubanks

      Copyright 2023 Library Journal, LLC Used with permission.

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